Most of you already know, but our daughter was adopted from China off of the SN list. She is HepB+. Because of this, we do some yearly testing (bloodwork, ultrasounds) and meet with a GI Dr to check on Lucy's ongoing status. This disorder effects the liver and can cause death. It appears that Lucy was given this disorder inutero, therefore, at we are very fortunate at this point that her body does not regognize there is anything wrong. This means her immune system is not fighting it, therefore causing no problems with her liver. Our visit with the GI Dr today was incredible! Not only were her liver functions GREAT, but we received an update about some studies that we had heard about last year. The Dr said that she feels these studies showed that there would be a combo of drugs available by the time Lucy is in high school to cure HepB. What incredible news!!
Please do not assume because of this news that we will not advocate for her medical care. It is proven that people who are HepB+ have a higher incidence of liver cancer. Lucy also has a small percentage of a chance of liver damage as well. We will continue to get the best care possible for our daughter, and continue to pray for the best!
This news was just to great not to share!!!!
Wednesday, February 25, 2009
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37 comments:
Oh Jill, what great news today! God is good.
What wonderful news! I'm so happy for you all. You must be thrilled!! I'm hoping for equally good news from Josie's cardio appt!!
Thanks for commenting on our blog!
Glad you got this hopeful news.
Great news for you and Lucy!!!
She is incredibly beautiful and I pray that she will be a healthy, strong woman who will raise a family of her own someday.
Praise God for the good news!
Love,
Beth
Hi Jill,
Yes, that is GREAT news! I pray, too, that a cure can be found soon. I don't remember if you were reading my blog back in Sept-Oct when I was really sick. (Actually, I wasn't blogging, but anyway...) I contracted Hepatitis E while we were in China to get Macy Li.....It is VERY rare, and only found in a few areas of the world (in 3rd world countries)....Anyway, "E" is acute; rather than chronic. Good for me, but while I had it, I became very aware of liver health, and all that goes with a sick liver. Not fun. I'll continue to pray that God protects her and that y'all see no effects of this.
Blessings!
~Rhonda
So glad to hear this great news! I love the new look of your blog, btw...if I didn't say so already!
Melba
As a new reader of your blog, I wasn't aware that Lucy was HepB+. Your willingness to share her story is amazing! We all benefit. God is GREAT, isn't he! The news is something to celebrate! Glad Lucy is doing so well!
So glad that you got another year of good news for Lucy! I'll be praying with you that a cure will be found...
Wonderful news for your family and the families of Hep+ Babies everywhere!
Great news!
Andrea
WHOO HOOO!!!!!!
YAY GOD!
Jill that is really wonderful! Didn't know that Lucy was HepB + and I appreciate you sharing a bit of her story. I know you are more than happy about this.
What wonderful news! God is good all the time!
I am so glad that you got such great news!!
Lisa
That is good news. Best to you all.
That is wonderful news!!! I know you will always take great care of your beautiful daughter!
BTW, I sent you an email with the link to my new blog. Let me know if you didn't get it.
That is wonderful news!! I know you are very happy. :-)
That is FABULOUS! Not only for your family and Lucy - but for so many others.
So wonderful to hear good news from a doctor:)
Glad she had a great doc visit. Blessed news for the future!!!
Yes that is great news!! In a few I will have the new post that will tag you on a 6 things meme. Give me 10 mins.
Oh how I love ending the week on hearing some good news! Thank You for sharing her status...
What great news!!! Oh how I hope that one day there is a cure!!
That is great news!! I don't know much about Hep B, but would love to find out more before we decide to adopt again. That will be so wonderful if they find a cure!!
Great news and we will continue to pray for all of you!!!
:)
Lynn
That is fabulous news for all of you! Sounds like your doctors are on top of every aspect.
And her hair is adorable ;)
What great news. God is sooo good. Huge praise! P.S. Love the new do!!
What wonderful news!!!
What wonderful news. I'm so happy for all of you!
Jill,
I am so HAPPY for you! THAT is wonderful news!! So glad Miss Lucy had a great visit with her MD!!! Sending lots of HUGS!!!!!
Love Ya!!!
That is wonderful wonderful news!!! Go Lucy! :)
Wow, that is incredible news for Lucy - and for the many families with children who have this SN! AWESOME.
WONDERFUL NEWS!!!!!!
Jen
Praise God! What wonderful news.
Hugs,
Ohilda
That is awesome news!
That is great news. What a cutie you have. We also have a jiangxi daughter with Hep B. I would love to know the names of the drug. We have only been home for 3 months so still new to this.
Amy
Oh hone, that is fabulous news! I am so happy for you and for little Lucy! Thank you for sharing your incredible news and please give Lucy a hug and kiss from us. :)
Hugs,
Jonni
Thanks for sharing that tidbit of info. Our son is also Hep B+ Our GI left our base, so we are only seeing our pedi right now. Though all his bloodwork is fine right now, I still worry from time to time about him...
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